Dysautonomia (POTS) is a rare disease that usually affects women between the ages of 12-15. My daughter was 3 or 4 when diagnosed.
Ross Hauser, MD In this article Dr. Hauser discusses: Dysautonomia – problems of or dysfunction of the autonomic nervous system. Its symptoms such as lightheadedness, palpitations, and tremulousness during standing. Postural Orthostatic Tachycardia Syndrome (POTS) and its cardio and cardio-like symptoms and conditions. The connection between dysautonomia/POTS with Ehlers-Danlos Syndrome, Joint Hypermobility Syndrome, Mast Cell Activation Syndrome, and GI dysfunction. We get many emails from people suffering themselves or with children suffering from Ehlers-Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome. They are being treated for tachycardia (rapid heartbeat), dizziness, fainting, headaches, vertigo, excessive fatigue, digestive problems including nausea, weight loss. Because …
It seems like there is an influx of people who are newly becoming diagnosed with POTS (postural orthostatic tachycardia syndrome). It may not be a coincidence either. In our post COVID world, we are just now beginning to understand how it has affected our population. According to this study, up to 40% of people who had long covid may have triggered an autonomic dysfunction (also known as dysautonomia). Do you suspect that your POTS, a form of dysautonomia, was triggered by a covid infection? It’s possible! Read more about that here. Newly Diagnosed with POTS Regardless of the cause of your POTS, you’ve been newly diagnosed. Receiving a diagnosis of POTS can have a couple different effects; relief as you were finally diagnosed and fear of what that looks like for your future. It often takes up to six years or more to get a diagnosis of POTS. Which means you’ve likely been experiencing the symptoms for many many years without a lot of knowledge of how to manage them. Symptoms of POTS Brain fog Rapid heart rate Shortness of breath Dizziness Fainting or feeling like you’ll faint Exhaustion/Fatigue Headaches Insomnia Temperature deregulation Excessive or lack of sweating Chest pain Low blood pressure/high blood pressure Blurred vision This is just the tip of the iceberg when it comes to symptoms of POTS. There are more, but these symptoms tend to be the most common amongst people with POTS. If you’ve been newly diagnosed with POTS you may be wondering how you can manage these symptoms. We have tips! 5 Tips For Managing Symptoms of POTS For the Newly Diagnosed Salt. ALL THE SALT. It’s likely your doctor after your diagnosis said to you, “Take {x amount} of sodium a day.” Which can be so very confusing because salt and sodium is not easy to convert (luckily we have a sodium/salt calculator). The amount of salt you need can seem astronomical; the Cleveland Clinic recommends 3,000mg - 10,000mg of sodium daily. How do you get that much sodium in a day?! We recommend drinking NormaLyte. Our PURE was made for people with POTS and has been clinically proven to manage symptoms. Exercise. We know. It seems like the solution all doctors give for any and all ailments. It can be frustrating especially when you have POTS because it can seem almost impossible to exercise when you’re struggling with debilitating fatigue. We talk about some different exercises that can be easier on the person with dysautonomia here. They are easy to manage while seated or laying down which can make a big difference when you’re not entirely sure you can manage standing for long periods of time. Yoga is also great for POTS! Compression garments. These are not cute. In fact, even the cute ones are not that cute. They will make a world of difference, though. By compressing and controlling so that you are not experiencing blood pooling in your legs. Monitor your symptoms. Keep a little notebook and document your day. This may help you make a connection between what you’re doing through the day and how you’re feeling overall. Keep a log of the amount of sodium you’ve consumed because that will also tell you what the correlation is in how you feel. Find a support team. Maybe it’s a parent, a sibling, or a friend. Maybe it’s the strangers in the facebook group you found. Whoever it may be, ensure you’ve got a support system of people surrounding you. Find someone empathetic, not sympathetic, who can offer a listening ear. What are some tips that you wish someone had given after you were newly diagnosed with POTS? Drop it in the comments below.
Wondering what to buy for someone with POTS? Check out this list of great gift ideas for people with POTS they are sure to love!
Evolvinn Therapy and Consulting was founded to help meet the demand for mental health care that surged during the COVID-19 pandemic and continues to grow.
It’s October, which means it’s Dysautonomia Awareness Month! You’ve probably heard about Dysautonomia by now because I’ve been advocating and sharing infographics every October for years...
This is a list of my top 10 POTS triggers that can worsen my symptoms. By pinpointing and avoiding triggers, you can better manage your POTS!
Dysautonomia (POTS) is a rare disease that usually affects women between the ages of 12-15. My daughter was 3 or 4 when diagnosed.
It's one thing to dislike heat, but it's something else to have heat intolerance. But what's heat intolerance exactly?
Evolvinn Therapy and Consulting was founded to help meet the demand for mental health care that surged during the COVID-19 pandemic and continues to grow.
Discover these POTS diet and nutrition tips that can help you manage POTS symptoms after eating and throughout the day.
Evolvinn Therapy and Consulting was founded to help meet the demand for mental health care that surged during the COVID-19 pandemic and continues to grow.
See how to relieve symptoms during a POTS flare up with these tips that I've learned from my own experience living with POTS.
See how to relieve symptoms during a POTS flare up with these tips that I've learned from my own experience living with POTS.
In this blog post, I share my best pro tips for living with POTS that can help you manage daily life with this syndrome.
POTS syndrome patient Kate the (Almost) Great shares what she thinks every POTS patient needs to survive the summer.
Are you noticing a connection between your period and the worsening of your POTS symptoms?This is extremely common. Menstruation does tend to worsen symptoms.In one research study, women in different menstrual cycle stages with (and without) POTS were compared after standing for 2 hours.The group of women in the follicular phase of their menstrual cycle had lower levels of aldosterone hormone (which affects the body’s ability to regulate blood pressure) compared to the women in the luteal phase.
Evolvinn Therapy and Consulting was founded to help meet the demand for mental health care that surged during the COVID-19 pandemic and continues to grow.
A Dysautonomia Treatment Survival Kit: Management of Postural Orthostatic Tachycardia Syndrome and other forms of Dysautonomia
