Recent studies are showing a connection between this disease trifecta, Mast Cell Activation Syndrome (MCAS), Postural Orthostatic Tachycardia Syndrome (POTS), and Ehlers-Danlos Syndrome (EDS)
Dental hygienists are well positioned to identify, treat, and refer patients who present with suspected or confirmed EDS signs and symptoms.
"I always feel like running away right after."
Ehlers-Danlos syndrome is an inherited disorder that effects the “glue” that holds our bodies together. Skin, joints, and blood vessel walls
These products help our community relieve pain and deal with joint hypermobility.
You might be an Ehlers-Danlos Syndrome / EDS Zebra if... you can find the humor through the pain!
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Ehlers Danlos Syndrome (EDS) is an illness with many symptoms resulting from a defect in the way collagen is produced. While there is no cure at the moment, there are ways to support collagen production in the body to decrease symptoms and help patients regain quality of life.
Looking for a book or resource on Ehlers Danlos Syndrome? Here you go!
Ehlers-Danlos syndrome (EDS) is a group of disorders that affect connective tissues, such as: tissues that support the skin, bones, blood vessels, and other organs (2014, Genetics Home Reference). It is estimated that about 1 in 5,000 individuals worldwide suffer from EDS (Genetics Home Reference, 2014).
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EDS is a complex illness and can cause many serious physical issues beyond simply "being flexible."
In recent years, an association between hypermobile Ehlers-Danlos syndrome (hEDS), mast cell activation syndrome (MCAS), and postural orthostatic tachycardia syndrome (POTS) has garnered attention and patients are increasingly presenting with this triad. However, a real relationship between these entities is unclear due to a lack of scientific validity. We conducted an extensive review of the literature using two different search strategies. A narrower strategy included 88 searches of various combinations of terms for each of the three conditions, yielding 19 unique papers. A broader search included 136 searches of various combinations of terms but included all forms of EDS and yielded 40 unique papers. Of these, only four and nine papers from the narrower and broader search strategies were original research articles. None of these papers resulted from a combination of the search terms for the three conditions. All three clinical entities are controversial in either existence or pathogenesis. MCAS is a poorly defined clinical entity, and many studies do not adhere to the proposed criteria when establishing the diagnosis. Patients previously diagnosed with EDS hypermobility type may not meet the new, stricter criteria for hEDS but may for a less severe hypermobility spectrum disorder (HSD). The pathophysiology of POTS is still unclear. An evidence-based, common pathophysiologic mechanism between any of the two, much less all three conditions, has yet to be described. Our review of the literature shows that current evidence is lacking on the existence of MCAS or hEDS as separate or significant clinical entities. Studies proposing a relationship between the three clinical entities are either biased or based on outdated criteria. The reason behind the purported association of these entities stems from an overlapping pool of vague, subjective symptoms, which is inadequate evidence to conclude that any such relationship exists.
Have you recently been diagnosed with Ehlers-Danlos syndrome but still have symptoms that don’t appear to be directly related? Do you have a friend who is incre
Learn about Ehlers Danlos Syndrome
Some people with Vascular Ehlers-Danlos syndrome have a noticeable characteristic appearance, while others don't have any outward signs at all.
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For those of you interested in the overlap between Ehlers-Danlos (EDS)/hypermobility spectrum disorders (HSD) and autism, sensory issues in EDS/HSD probably come as no great surprise. Nevertheless,…
A site to raise awareness, support, and be a science based resource for people dealing with POTS (Postural Orthostatic Tachycardia Syndrome), which is a type of Dysautonomia. Lots of information no matter where you live- with tips/tools for navigating doctors, family, friends, and life with POTS/Dysautonomia. I'm on a mission to get the word out, help people find their POTS cause, and also improve treatment options and support here locally in Virginia, MD, and DC. All locations welcome :)
Unlock nutrition tips & resources for optimal health while living with Ehlers-Danlos Syndrome. Explore our top 10 recommendations to support your well-being.
Looking for a book or resource on Ehlers Danlos Syndrome? Here you go!
What does Hypermobile Ehlers Danlos Syndrome look like? After announcing that I was recently diagnosed with Hypermobile Ehlers Danlos Syndrome and the support you all gave me, it meant a lot. As I …
"Some people and doctors will never see us from the inside out."
Discover effective treatments for Ehlers Danlos Syndrome (EDS): relief from pain, joint support, and improved quality of life.
PART FIVE: TREATMENT AND MANAGEMENT 11.0 Treatment and Management “Emotional support and behavioral and psychological therapy may help in developing acceptance and coping skills.” (Malfait et al., 2018). Early diagnosis is extremely important for an individual’s present and future health. In general, symptoms will be treated as they arise. Care is largely preventative – being
Looking for a book or resource on Ehlers Danlos Syndrome? Here you go!
