My illness varies from totally fine to completely disabling. Here are some issues that many with dynamic disabilities face.
Explore the world of hidden disabilities: Understand their impact, learn about symptoms, treatments, and how to offer effective support.
Have you ever been out in town and seen somebody who looks perfectly healthy get out of a car they had just parked in the spot for disabled people or seen somebody on a mobility scooter park outside and walk into the shop? If you are anything like I was before I fell ill, you […]
Making the invisible a little more visible.
Disabilities are usually categorized as visible or invisible – but what about the in-between?
The unsolicited comments disabled people receive on a daily basis are so predictable, you can use them to play Ableism Bingo. This article covers those many of those comments and where they come from.
For Invisible Disabilities Awareness Week, I thought I’d write about my experience of travelling from Manchester airport with an invisible disability.
The unspoken struggles and stigma come out from the shadows. We hope it makes a difference for something far too often misunderstood.
An adorable homemade sticker with 5 little ghosts with various visible and invisible disabilities, with the text "Not all disabilities are visible". Perfect as a gift to yourself or to a spoonie loved one. Ideal to stop rude stares and confrontations when parking in disabled spaces with an invisible illness/ disability. Help us spread the word and better educate the world about invisible disabilities. - Laminated die cut vinyl with a sensory friendly smooth glossy finish Highly durable, weather proof, water resistant with UV protection to stop fading and keep your sticker vibrant Suitable for both indoor and outdoor use, perfect on phones, water bottles, laptops, wheelchairs, mobility aids and cars. Outdoor durability 4 years. - Our mission is to bring awareness to all chronic conditions, invisible illnesses and disabilities to support fellow sufferers and deepen our society's understanding of chronic illnesses. - Tag us in your photos on Instagram! @spooniewarriorshop - Visit our shop homepage for more chronic illness products and to see the whole Spoonie Warrior range <3 https://www.etsy.com/uk/shop/SpoonieWarriorShop
When the term disability comes up, for many the first thing that comes to mind is something of a physical nature. However, the Accessibility Services department at Cal State East Bay is trying to shine a light on invisible disabilities that can cause confusion. Asperger’s syndrome, attention deficit hyperactivity disorders or ADHD, brain injuries, learning...
Many people are struggling each and every day with challenges and disabilities that the people around them can’t necessarily see. Numerous health conditions are invisible and are often only known to the person themselves such as rheumatoid arthritis, osteoarthritis, multiple sclerosis, bipolar disorder, autism, fibromyalgia, irritable bowel syndrome (IBS) and epilepsy. A common phrase heard by people with invisible disabilities is “But you don’t look sick”. And sadly people are often not apt to believe what they can’t see. Christina Irene, an invisible-disabilities speaker says “Invisible conditions can be just as disabling as visible conditions — oftentimes more so — but they don’t get the empathy or credibility that visible conditions get”. And to make matters even tougher advocate Eileen Davidson felt the fact that her illness wasn't apparent made her delay getting care.
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A Sydney mother left trembling after she was harassed for parking in a disabled space at school despite having a son who suffers from a series of illnesses has hit back at her critics.
The standard pain scale doesn't really work when you live with chronic pain. There are better ways to express your pain.
Sunflower-branded lanyards are now available at several big London railway stations to help passengers with hidden disabilities. The lanyards, which we launched at Manchester Piccadilly, London Euston, Liverpool Lime Street and Birmingham New Street stations in December, enable people to discreetly show staff they might need extra help while travelling. Their roll-out at more large … Continued
In so many ways, this image speaks for itself. But it also reminds me of the video "I am Brianna Couture". It's a video meant to open our eyes to the notion of invisible disabilities. Let's engage in an exercise. Say (or think) the word "disability" and write the first five words that come to your mind (or draw what you think of, or say five words into a recording device...). Were your words physical traits, intellectual descriptions or social/emotional concepts? Do your words express limitations or gifts? Are their connotations positive or negative? Watch the video: Now repeat the exercise from above. Did your words change? Is your thinking slightly different now that you have watched the video? I hope so. That was the point. We make assumptions all the time without really learning someone's situation. We must strive to give the benefit of the doubt and seek to understand others and their situations without judgement. Too often, when discussing inclusion in faith communities, I have heard: "We don't have any members (of our congregation) with disabilities, so we don't really need to think about inclusion." Really? There are NO members with disabilities? Watch the video again. And if it’s true...if your congregation really doesn't have a single member with a disability; why not? I would venture to guess that an unwillingness to consider inclusive practices keeps those members with disabilities away. Our attitudes continue to be the greatest barrier to inclusive communities. We don't "do inclusion" for our members. Rather, creating an inclusive community is about being ready. When we wait until someone comes through our doors, often it is too late and the accommodations become reactive. True inclusion is proactive. We should always be prepared to say, "welcome"; of course we can accommodate your needs. Don't miss a post from Removing the Stumbling Block:
Though I understand its point, I haven’t been able to warm to the idea of Disability Pride Month. The wording is just too . . . awkward. . . for me. I am, however, all aboard for Disability A…
Check out my best tips for travelling with chronic illness and disability. Learn what my emergency protocols and travel hacks are.
How people with chronic illness manage work.
Within a few months of seeing me for psoriatic arthritis and fibromyalgia, my rheumatologist could see how much I was struggling to walk any distance. In fact, it was he who suggested that I get a parking placard for my car and handed me a form with his signature to get one asap. What was strange is that he never discussed use of a mobility aid.
December 3 is International Day of People with Disabilities. It’s a great opportunity to raise awareness and make some noise all over the internet (and in real life) if you can manage it. The message I want to get across this year, is that not every disability is visible. There are many conditions that do […]
Fibromyalgia and the mobility problems it creates are real. 😎 Learn how to keep moving even when your body can't keep up.
I wanted to share these infographics I made because I think Spoon Theory is important, and also, I get asked a lot about it.
"If you pay enough attention, you will notice the little clues."
