Ehlers-Danlos syndrome (EDS), postural orthostatic tachycardia syndrome (POTS), and mast cell activation syndrome (MCAS) are inter-related diseases.
Evolvinn Therapy and Consulting was founded to help meet the demand for mental health care that surged during the COVID-19 pandemic and continues to grow.
Find holiday gift ideas for ehlers danlos patients that help to manage symptoms and improve mobility. These are my top picks!
A list of braces for EDS - I will update as I find more.
Evolvinn Therapy and Consulting was founded to help meet the demand for mental health care that surged during the COVID-19 pandemic and continues to grow.
Making the invisible a little more visible.
Evolvinn Therapy and Consulting was founded to help meet the demand for mental health care that surged during the COVID-19 pandemic and continues to grow.
POTS symptoms vary widely by patient. Here are some of POTS Care's most interesting cases, and what we did to diagnose and treat them.
In recent years, an association between hypermobile Ehlers-Danlos syndrome (hEDS), mast cell activation syndrome (MCAS), and postural orthostatic tachycardia syndrome (POTS) has garnered attention and patients are increasingly presenting with this triad. However, a real relationship between these entities is unclear due to a lack of scientific validity. We conducted an extensive review of the literature using two different search strategies. A narrower strategy included 88 searches of various combinations of terms for each of the three conditions, yielding 19 unique papers. A broader search included 136 searches of various combinations of terms but included all forms of EDS and yielded 40 unique papers. Of these, only four and nine papers from the narrower and broader search strategies were original research articles. None of these papers resulted from a combination of the search terms for the three conditions. All three clinical entities are controversial in either existence or pathogenesis. MCAS is a poorly defined clinical entity, and many studies do not adhere to the proposed criteria when establishing the diagnosis. Patients previously diagnosed with EDS hypermobility type may not meet the new, stricter criteria for hEDS but may for a less severe hypermobility spectrum disorder (HSD). The pathophysiology of POTS is still unclear. An evidence-based, common pathophysiologic mechanism between any of the two, much less all three conditions, has yet to be described. Our review of the literature shows that current evidence is lacking on the existence of MCAS or hEDS as separate or significant clinical entities. Studies proposing a relationship between the three clinical entities are either biased or based on outdated criteria. The reason behind the purported association of these entities stems from an overlapping pool of vague, subjective symptoms, which is inadequate evidence to conclude that any such relationship exists.
[Drawing of two stick-figure girls talking–one looks surprised, while the other looks horrified. Above them are the words, “POTS Problem #47: Blood Pooling!” The horrified girl screams, “OHMYGOSH WHAT’S WRONG WITH YOUR FOOT?!” The other girl’s feet are purple.] No, these are not the shoes I’m wearing with my monster costume, thankyouverymuch.
EDS is a complex illness and can cause many serious physical issues beyond simply "being flexible."
Here's where you can find support.
POTS has tachycardia symptoms that could influence the severity of Adrenal Fatigue in those suffering from this condition.
Are you noticing a connection between your period and the worsening of your POTS symptoms?This is extremely common. Menstruation does tend to worsen symptoms.In one research study, women in different menstrual cycle stages with (and without) POTS were compared after standing for 2 hours.The group of women in the follicular phase of their menstrual cycle had lower levels of aldosterone hormone (which affects the body’s ability to regulate blood pressure) compared to the women in the luteal phase.
After receiving a comment from a fellow blogger (find them here) they suggested I should explain more about #EhlersDanlosSyndrome and honestly I should. What is Eds? So Ehlers-Danlos syndromes (EDS…
*Disclaimer: I am not a medical professional. I’m just a girl, standing in front of a mirror, asking her body what the hell is wrong and how I can fix it.* Last year, I was finally diagnosed with…
An important part of managing POTS is understanding POTS itself. Depending on the person, POTS may need to be defined or described differently. Here you will find information for the person living …
Feb 28 is Rare Diseases Day. Our spotlight is on Kyphoscoliotic Ehlers-Danlos Syndrome, and Emily shares about her experiences living with this condit
[Drawing of a stick-figure guy talking to a stick-figure girl. Above them are the words, “POTS Problem #40: Apathy!” The guy looks up at the words with a smile and says, “Wow! This is your 40th POTS Problem comic! That’s so cool!” The girl, staring blankly up at the words, replies, “Huh. Yeah, I guess it is.”] Look, I’m not saying it’s a good thing, but emotions just take a lot of energy…
