EDS is a complex illness and can cause many serious physical issues beyond simply "being flexible."

Learn about Ehlers Danlos Syndrome

Dental hygienists are well positioned to identify, treat, and refer patients who present with suspected or confirmed EDS signs and symptoms.

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Types of exercise best suited for people with EDS, as well as how to safely exercise while living with this chronic condition.

"EDS isn’t just 'being super bendy' or 'being double-jointed.'"

I have both endometriosis and Ehlers-Danlos syndrome. I always wondered if they were connected and here is what I found. Before I do dive into my research, I thought it was best to first understand what Ehlers-Danlos syndrome and endometriosis are. Also if you prefer to see a video version of this post then you can right here, if not, then

Upright MRI: De procedure wordt uitgevoerd in een natuurlijke gewicht dragende positie (zwaartekracht). De patiënt kan opstaan, gaan zitten, zijn nek buigen en in verschillendeContinue reading

For those of you interested in the overlap between Ehlers-Danlos (EDS)/hypermobility spectrum disorders (HSD) and autism, sensory issues in EDS/HSD probably come as no great surprise. Nevertheless,…

Have you recently been diagnosed with Ehlers-Danlos syndrome but still have symptoms that don’t appear to be directly related? Do you have a friend who is incre

Discover effective treatments for Ehlers Danlos Syndrome (EDS): relief from pain, joint support, and improved quality of life.

Create custom stickers for every occasion! From special mailings and scrapbooking to kids’ activities and DIY projects, you’ll find these stickers are great for so many uses. Add your own designs, patterns, text, and pictures! Dimensions: Available in 2 sizes: Large: 3" L x 3” W, 6 stickers per sheet Small: 1.5" L x 1.5” W, 20 stickers per sheet Printed on white acid-free paper Vibrant full-color, full-bleed printing Scratch-resistant front, easy peel-and-stick back Available in a matte or glossy finish Choose between 7 different shapes

What Is Ehlers-Danlos Syndrome? Ehler-Danlos syndrome is a group of rare inherited disorders that affect the body’s connective tissues, especially the

“You know you have EDS when you roll more joints than Snoop Dogg, and I mean your ankle, not your medical Mary Jane.”

A blog about special needs, chronic illness, parenting, and life in general.

Actuele en betrouwbare informatie door huidartsen over het syndroom van Ehlers-Danlos. Over de oorzaken, de symptomen en behandelingen.

"People often blush when I bring that up..."

Hello everyone, One of my conditions I write about a lot on my blog, is Ehlers Danlos Syndrome (EDS). I always find it interesting to hear other peoples perspectives who live with the same conditio…

Have you recently been diagnosed with Ehlers-Danlos syndrome but still have symptoms that don’t appear to be directly related? Do you have a friend who is incre

A common question I hear from my patients and clients who have been diagnosed with Ehlers Danlos Syndrome (EDS) or Hypermobility Spectrum Disorder (HSD) is, “If my joints are so loose, why do I feel so tight?” A feeling of tightness of the muscles, often resulting in pain and discomfort is very common among those […]

If you frequently dislocate your joints and have eye problems, the issues may be medically related. Frequent dislocation of joints may be caused by a connective tissue disorder called Ehlers-Danlos syndrome, which is due to a genetic mutation of the collagen in nearly each of your body’s cells. Other common symptoms of EDS include muscle […]

"I wish people understood how fragile our skin is."

"Little do they all know..."

These products help our community relieve pain and deal with joint hypermobility.

Although the syndromes we now know as Ehlers-Danlos (EDS) were first described as far back as 1892, the number of available materials for patients and medical professionals is surprisingly few. Con…

UPDATE: On March 15 2017, criteria and classifications of The Ehlers Danlos Syndromes were updated for the first time in 20 years. In light of this, I will update my guide (with the new information…

What is MCAS? Nederlandstalige versie volgt.Continue reading

Although much of my research efforts to date have focused on the genetics of autism, over the last year or so I’ve turned a significant part of my attention to a particular group of connectiv…

Looking for a book or resource on Ehlers Danlos Syndrome? Here you go!

For those of you interested in the overlap between Ehlers-Danlos (EDS)/hypermobility spectrum disorders (HSD) and autism, sensory issues in EDS/HSD probably come as no great surprise. Nevertheless,…

"It’s not just being sleepy."

"I always feel like running away right after."