In the first couple of years, I found it uncomfortable to explain my disease to those around me. I didn't want to seem like a "weird" sick person. I also
It is still possible to set and work towards goals, even with a chronic illness. Here are some tips for setting achievable goals with chronic illness!
Before I had CVID, I never really thought about health insurance. I was a young person who went to college, held part time jobs, was on my Dad's insurance,
The unpredictability of chronic illness makes it difficult to set goals. How can we make planning for the future with chronic illness simpler & more effective?
I know how difficult independently living with a chronic illness can be. So in this post, I'm going to cover what specifically has been difficult for me when living independently, strategies I use (and are helpful) now, and things I don't do that could help you. Whether you’re looking to be independent or you already are and want tips, this post will help.
Discover tips for overcoming the physical, mental, emotional, financial, occupational and relational challenges of living with chronic Illness
In the first couple of years, I found it uncomfortable to explain my disease to those around me. I didn't want to seem like a "weird" sick person. I also
A long-time patient shares her organization resources for chronic illness, along with why organizing helps.
Feeling like the same chronic illness cycle keeps repeating? Find out how to use your knowledge of your symptom cycle as a practical tool to empower yourself to live well with chronic illness in this blog post by an experienced chronic illness coach.
Do you struggle to find balance between your chronic illness and dealing with the stress of everyday life? Here are 3 fundamentals to help you manage both effectively by board certified health coach, Leslie Thorpe.
Living with chronic illness is difficult enough without accepting and loving your body. Here's why how you can in order to make your life a bit better.
Life doesn't stop for chronic illness. It just keeps going, and it can be hard to keep up. Sometimes I will look at my calendar for the coming week and it
I know how difficult independently living with a chronic illness can be. So in this post, I'm going to cover what specifically has been difficult for me when living independently, strategies I use (and are helpful) now, and things I don't do that could help you. Whether you’re looking to be independent or you already are and want tips, this post will help.
Having a rare disease is a strange experience because it means that there aren't many others walking the same journey. Luckily, modern technology and social media have allowed us to find and connect with others, which is extremely important!
Discover tips for overcoming the physical, mental, emotional, financial, occupational and relational challenges of living with chronic Illness
Going to university can be one of the most exciting times in a person’s life. The additional freedoms, ability to start studying a subject area that
So much about living with chronic illness is difficult. (Like, all of it.) But I personally think that the hardest part is accepting you have a chronic illness. I don’t know if it’s denial or not understanding that most people don’t have a symptom you live with or if it’s something else entirely. I just know that it’s damn hard. To make that easier, I thought I would share my tips for how to accept a chronic illness, as well as what that means.
I know how difficult independently living with a chronic illness can be. So in this post, I'm going to cover what specifically has been difficult for me when living independently, strategies I use (and are helpful) now, and things I don't do that could help you. Whether you’re looking to be independent or you already are and want tips, this post will help.
So much about living with chronic illness is difficult. (Like, all of it.) But I personally think that the hardest part is accepting you have a chronic illness. I don’t know if it’s denial or not understanding that most people don’t have a symptom you live with or if it’s something else entirely. I just know that it’s damn hard. To make that easier, I thought I would share my tips for how to accept a chronic illness, as well as what that means.
So much about living with chronic illness is difficult. (Like, all of it.) But I personally think that the hardest part is accepting you have a chronic illness. I don’t know if it’s denial or not understanding that most people don’t have a symptom you live with or if it’s something else entirely. I just know that it’s damn hard. To make that easier, I thought I would share my tips for how to accept a chronic illness, as well as what that means.
Vital differences between coping and adapting to life with a chronic illness you need to know to live better today and tomorrow.
My list of relatable signs of chronic illness describes my life with lupus and are meant make others feel a bit less alone on this chronic illness journey.
After getting a probable diagnosis of Cerebral Palsy, Rhiann became a keen blogger, documenting her life and experiences with a neurological disorder.
The holidays with a chronic illness can be extra stressful. Learn how to prepare for, handle, and enjoy the holidays when chronically ill!
Is your relationship tested by chronic illness? My marriage certainly is... The meaning of "in sickness and in health"...
I think one of the hardest challenges of having a chronic illness is being understood. No matter how loving and supportive and genuinely concerned a person is, they simply cannot understand if they are not ill themselves.
Is your relationship tested by chronic illness? My marriage certainly is... The meaning of "in sickness and in health"...
A story on living with chronic illness and the impact on quality of life. Plus coping strategies to deal with being chronically ill.
Having a rare disease is a strange experience because it means that there aren't many others walking the same journey. Luckily, modern technology and social media have allowed us to find and connect with others, which is extremely important!
Having a rare disease is a strange experience because it means that there aren't many others walking the same journey. Luckily, modern technology and social media have allowed us to find and connect with others, which is extremely important!
I know how difficult independently living with a chronic illness can be. So in this post, I'm going to cover what specifically has been difficult for me when living independently, strategies I use (and are helpful) now, and things I don't do that could help you. Whether you’re looking to be independent or you already are and want tips, this post will help.
When it comes to chronic illness, there's a lot to learn. Maybe you have a chronic illness, maybe someone in your life has one. I've talked a lot about specific elements to chronic illness over the years, but I thought I would go into some chronic illness basics today, such as the question, "What is considered a chronic illness?"
I know how difficult independently living with a chronic illness can be. So in this post, I'm going to cover what specifically has been difficult for me when living independently, strategies I use (and are helpful) now, and things I don't do that could help you. Whether you’re looking to be independent or you already are and want tips, this post will help.
So much about living with chronic illness is difficult. (Like, all of it.) But I personally think that the hardest part is accepting you have a chronic illness. I don’t know if it’s denial or not understanding that most people don’t have a symptom you live with or if it’s something else entirely. I just know that it’s damn hard. To make that easier, I thought I would share my tips for how to accept a chronic illness, as well as what that means.
One of the most powerful things I ever did to help me cope with having a chronic illness was learning to adapt my plans and be flexible. This post is part 2 of the 5 Keys to Adaptability for Those Living With Chronic Illness series. Click through to read more!
Laura's Pen shares her story of the loss of self and grief she experienced when she became chronically ill, and how she found herself again... I recently watched a BBC drama/film 'The C word', about a
Struggling with chronic illness? Discover the surprising ways that identifying with your chronic illness can benefit help you adapt & thrive.
Every invitation I receive has to be weighed against the scales of my chronic pain and the mental strain that accompanies it.
"Getting to dress up as different characters let me forget about my illnesses for a little bit."
Discover tips for overcoming the physical, mental, emotional, financial, occupational and relational challenges of living with chronic Illness
Today I’m sharing a new video that gets into the links between early childhood stress (aka: adversity, abuse, bad stuff that happens to us, and so on) and chronic illness later in life. While this is old news on the research and science front, it is still having a tough time
I struggle with several chronic illnesses so there are times I just don't feel well. You too? Come explore the 10 things I do when I'm not feeling well.
From research and my own experience, I’ve created a sort of guide to productivity with chronic illness, to help me & my fellow spoonies.
Join me as I share 15 hard-earned lessons from my life with chronic illness. From self-worth to resilience and building support, each insight offers practical strategies for navigating life's challenges with grace and empowerment.
Find out why memory-keeping is an important part of chronic illness. This post describes the importance of describing your symptoms as graphically as you can while experiencing them, and how that information will help you in the future.
Seeing a new doctor can be stressful. Check out these tips to prepare for a doctor's appointment and make the most of your visit.
Having a rare disease is a strange experience because it means that there aren't many others walking the same journey. Luckily, modern technology and social media have allowed us to find and connect with others, which is extremely important!
